A few years ago, two days before Katya was due to give birth, she was told she would have a son with Down Syndrome. Immediately after the birth, doctors were insistent that she should leave her child at the maternity ward. Katya didn’t agree.
She found support in her parents and among close friends. That is how the long journey in the battle for life and health for Nikita began. Nikita is six now, he has Down Syndrome and polycystic lung disease. In the past he had patent ductus arteriosus, a diaphragmatic hernia and benign growth in pleural cavities. He has undergone a total of 5 operations, 30 general anaesthetics, 21 days on life support with AL (artificial lung ventilation) and a year and a half of tracheostomy. On top of that he can’t chew and hasn’t been able to walk since he was four.